Things are going fairly well. As is so often the case in these situations, it’s the little things that are causing the most pain (literally). Austin was extremely irritated by the NG tube, which thankfully was removed this morning. His next complaint was his foley catheter, which caused my visiting brother pain to even think […]
OK, I ‘ve just arrived home having only slept two hours last night so this one may be a bit garbled. But, exhausted as I am, I am breathing deeply and feeling pretty good. Most important things first, Austin is out of surgery and in the PICU with his daddy and with his kidney (not […]
This one is short and sweet. Just got a text on our OR issued pager saying the area has been removed and all is going well. We should see him in an hour or two. More later but SO FAR SO GOOD!
Here we go again. Mark and Austin just left for the hospital and I will meet them this there evening (after updating, running and having dinner with at my parents’ with Braedan). I will stay the night and Mark will return bright and early tomorrow morning. This afternoon, Austin needs a “bowel prep” which is […]
My sincere apologies (partly tongue in cheek) for not requesting anyone’s help on Thursday night with the whole key debacle. It honestly didn’t even occur to me to ask someone else to do it for me but I promise you I will the next time (although we do try to learn from our mistakes and […]
If, by any chance, you’ve been waiting around for some news from today’s scans, well … imagine how we feel. But we do finally have news and it’s mostly good. Good because it hasn’t spread; there is no cancer in Austin’s lungs or liver. Mostly because the mass seems to have grown yet again (from […]
Finally, some answers to the question I’ve heard literally hundreds of times over the past few days: What can I do to help? First, the practical stuff: My friend Julie will create a plan for meal deliveries so watch for that in your inbox. These need not be big or fancy meals; just enough for […]
First of all, thank you thank you thank you for the enormous outpouring of support and love and sadness that came from all corners yesterday. It means so very much to us to know there are so many people out there thinking about us and praying for us and pulling for us. I have said […]
Oh, how I wanted to be surprised. I wanted to be shocked, disbelieving: “What?! Really? It shrunk? It disappeared? It can do that??” But no, I was not surprised. It was as we had thought. And as we had feared. This little mass has doubled in size, from 1 centimeter in diameter to 2, in […]
We’re fattening up again. Packing in as much Christmas as we possibly can before … well, before who knows what, but at the very least, before tomorrow. Friday afternoon, we went to visit Santa, arriving at five minutes after 5 o’clock only to discover that Santa “feeds his reindeer” between 5 and 6 (I swear, […]