Every time we are faced with a new obstacle, I feel overwhelmed and pissed off and sad and convinced that this one is it, this is the one that will bring us down, that will change who we are, who he is. And every time I’ve been proved wrong. Every time we’ve ended up okay. […]
Okay. That’s my answer. That’s the post. Okay. It’s not fantastic like it was in January. And it’s definitely not horrible like the score from last Thursday. It’s okay. And that’s good enough. I’ll give you the hard numbers, so you can make some sense of this roller coaster we’re forced to ride each day. […]
I know that this stuff can be confusing. And of course scary. And sometimes being scary makes it more confusing or being confusing makes it more scary, so let me give you a little more information. This test, the GFR (glomerular filtration rate, words you can quickly forget) or nuclear scan, is one of the […]
After last week’s emotional high, we’ve begun that speedy descent downward. Well, no, that’s not true, we haven’t begun it yet. It’s more like we’re perched at the top of the roller coaster, having slowly crept up with the creak creak creak of the wheels and are now poised at the top, awaiting the plunge. […]
No, this isn’t about a bad pathology report or anything. It’s actually sort of funny. (Just wanted to set your minds at ease after reading that title.) You know the whole “pee is pee and pee is good” business and all the stars that include wishes for pee and lots and lots of it? Well, […]
There are many reasons why I write this blog everyday. A lot of it has to do with needing a place to process my own feelings, an outlet for expressing my fears and hopes and all the good and bad that comes along with childhood cancer. I often write to pass along information to all of you, my friends and family and […]