The CureSearch Walk was lovely. Thank you so much to those of you who came or who donated money to our team. Northeast Ohio raised more than $47,000 for the important research of the Children’s Oncology Group. Last year, because the weather was so awful, people registered quickly, walked with their heads down against the […]
There were many years when Mark and I planned our springs and summers around weddings. Weddings of his friends, my friends, family members. Weddings in Cleveland and Chautauqua, Chicago, Florida, New Orleans and Boston. And then suddenly, right when we were complaining about too many weddings, they stopped. We got old, I guess, and as […]
… one to go. All went well today, except that everything took way longer than expected (I’m amazed that I still somehow expect things to go as scheduled). But Austin was a trooper — it is so much easier to wile away half a day in waiting rooms at this age than when he was […]
Tomorrow are Austin’s one-year scans. He’ll have his usual procedures: labs drawn, followed by an abdominal ultrasound to look at the liver and kidney, followed by a chest CT, followed by a visit with his oncology team. And we’ll follow our regular schedule: a normal morning at school, then lunch at the fountain outside the […]
The fascinating thing about that last day of chemo a year (and two days) ago was that we didn’t know it was our last. I remember the day pretty well and I mentioned it in this post. You can see that I never said anything that sounded triumphant or victorious, I never used the words […]
One year ago today Austin had his last dose of chemotherapy, now making him officially “one year out” from the end of treatment. And halfway there. Of course, nothing is official until he has his next round of scans which isn’t scheduled until May 12 because of the difficulty coordinating the various procedures he’ll have […]
I’ve just finished reading My Sister’s Keeper by Jodi Picoult, an author whose books I’ve been disappointed by in the past. Not this one. It’s been out for years now and I was actually encouraged to read it by friends before Austin was even born. Then my mom read it following Austin’s first round of […]
Did I really say that I don’t mind washing the sheets every other day? Okay, fine, I take that one back. And another thing (this one positive): Austin’s doc said we can ease up on the dietary restrictions, which is obviously great news. Especially since we’ve already been easing up on the dietary restrictions. Now […]
As we near the one year mark since the end of Austin’s cancer treatment, he has a series of appointments, scans and lab work scheduled. Today was a visit with his kidney doctor, our first exclusively with her since early last summer. All in all, he’s doing very well and is perfectly positioned in the […]
Now that I no longer gasp in surprise every time one of my boys walks in the room with only fuzz on their heads, here’s the full scoop on our St Baldrick’s Day events: Austin was excited all day, asking over and over again when we would go pick up Braedan. Finally, the moment arrived […]