Things continue to go well. Austin has been increasingly cranky as the days go by but it’s hard to tell if that’s because he feels lousy or because he’s just plain sick of being there. He has made several new friends, all “big boys” with whom he races remote control cars or goes bowling on […]
For some unknown reason, I was unable to get holiday cards into the mail this year, so here it is, our virtual greeting to all of you. 2009: what a year. It started with the Dietrich family vacation to Jamaica, where the boys enjoyed swimming in the ocean, swimming in the pool, and naked soccer […]
There is certainly something to be said for expecting the worst. These past two days have been so much better than I was anticipating. So much better. Now, it’s only two days and many of the effects of chemo are cumulative and therefore get worse as time goes on, but so far, it hasn’t been […]
I overslept. Can you believe it? I rolled over from a very deep sleep, groggily looked at my alarm clock (which I’d set for 6 am) and saw that it was 7:15. 7:15! And we were supposed to have arrived in the sedation unit at 7! Well, I dove out of bed and went rushing […]
Packing our bags again (you’d think by now I would just keep one ready and sitting by the door). Austin and I are due in the sedation unit tomorrow morning at 7 for his 8 o’clock time slot in radiation. He needs to be sedated every time he has radiation so he doesn’t move (telling […]
Boy, I thought we had a lot of toys last week…. These kids have made out like bandits. And they are thoroughly enjoying it. A little proof for you: The above stash came from the family of a cancer survivor who provides presents to those kids who are in-patient at Christmas. We obviously weren’t but […]
I’ve been struggling. Focusing in on the absolute worst possible outcome in any given scenario. Certain that Austin would fall victim to every “rare but serious” side effect listed for each of his drugs (things that range from permanent hearing loss to irreversible organ failure to the big D). Wondering how many children I’ll be […]
I know you all want to help. Every day, many times every day, people lament to me that they feel as if they’re just not doing enough. You beg for tasks needing completion or take my packages to the post office when you weren’t really planning on going (despite saying you were). You go quietly […]
OK, so it’s probably a good thing that I’ve been far too exhausted and far far too busy to update for the past forty-eight hours because the plan had changed about forty-eight times since then. Well, no, it’s not the plan that’s changed so much as the details of the plan. But now I think […]
Just because you have a plan doesn’t mean things will go according to it …. Don’t worry, nothing major except that instead of sitting around my table enjoying this delicious meal with my family, I am sitting in front of the computer quickly eating before packing my gear for one more night. Today’s surgery to […]