Thank you, yet again yet again, for the outpouring of support and well wishes coming our way. You can not possibly know how much strength we draw from all of you. Yesterday ended with better news. Not the good news we’d been expecting on Thursday, but definitely better news. Dr. Auletta spent a good chunk […]
And then we wait and we worry and we wish some more. But we don’t exhale with relief when the good news is delivered. Because it’s not good news that’s delivered. There’s another shadow. Another fucking shadow. God, this is the never-ending story. This shadow is actually inside the left kidney, which is really lousy. […]
It’s that time of year again. We head into the hospital tonight after dinner to hydrate Austin for a CT scan tomorrow. His last was in the end of June and if this one comes back clear, we’ll be able to wait six months until the next (a welcome break to be sure). We’re going […]
… always a teacher. Last Tuesday (the morning after our lovely evening in the ER), I had the opportunity to speak to a class of first year med students at Case. The professor is a friend of mine and was a regular reader of Austin’s Carepage. She teaches what she’s dubbed the “touchy-feely” coursework at […]
Perhaps you think I’ve been neglecting my blog because I’ve been lounging around watching the Grey’s Anatomy premiere on DVR? No, haven’t managed to see that yet (but I must before Thursday). Or maybe you think we were whisked away on some relaxing mini-vacation? Nope, not that either. In fact, we’ve been busily finalizing our kitchen […]
And so, another year goes by. Today was Austin’s third birthday. Of course, we can’t make it through this day without reflecting back over his birthdays past and how very far we’ve come in three short years. We celebrated his first birthday while home on furlough, five days “off” sandwiched between 14-day and 15-day hospital stays. […]
Now it’s my little one’s turn. Austin had his first solo day of preschool today and, let me tell you, it was not easy. He’d already done two practice days but I was in the building for both, a fact he knew and clung to for comfort and security. Today was the day that I’d […]
On this day, I know every one of us thinks back to where we were on that morning eight years ago; what we were doing, how we learned the news, who we called first. Everyone has their 9/11 story, just like everyone of older generations has their Pearl Harbor story or their JFK assassination story. […]
Every day we know we’re lucky to have Austin. As I’ve said before, I try hard not to hover over him, I push myself to let him be a normal kid, taking risks and falling down and all that. But sometimes, I let him go too far. On Wednesday, after the funeral of our friend’s mother, there […]
And so, another year goes by. July 30, 2007 was the day. The Day that everything changed. A day that started out like any other summer Monday. And ended with me and Mark sitting on a couch in a hospital room, holding on to each other for dear life, unable to finish our sentences, barely able […]