BaseBald

First of all, thank you for the many birthday wishes yesterday. I had a lovely day with my family, including lunch and a little shopping with my favorite partner in crime (my mom) sandwiched between breakfast with homemade gifts from my sweet boys and I’m-not-cooking-tonight Marotta’s delivered by my handsome husband for dinner. And now […]

Gifts, Large and Small

There are so many reasons we love St. Baldrick’s. Of course, the very necessary research they fund is the main one. But these events and the shavees give us so much more than that. Here are some of the gifts, large and small, we’ve received from our involvement with St. Baldrick’s this year. There are […]

You Matter

We are well on our way. The twenty-nine brave shavees registered for the Cleveland Heights St. Baldrick’s event have raised more then ten thousand dollars. And we are well on our way to reaching our event goal of $15,000. Of course, if every shavee actually met their own individual goal as stated on their page, […]

Success

When I was in eight grade, we had an assembly and, while I can’t remember what on earth it was about, I do know that the man up on stage opened up by asking us our definition of success: What does it mean to be successful? I quickly rose my hand and offered my answer: […]

All of Us

I just got my event planning package in the mail from St Baldrick’s today for my March head-shaving event for children. I eagerly opened the box and found my three beautiful boys looking back at me, several hundred times over. I received fifty posters and 1,500 pocket brochures, every one of them featuring this image: […]

What Matters Most

Today’s results were all good. Well, not exactly all good (keep reading), but good in the ways that matter most. His kidney function is holding steady, which is fabulous. His CT and ultrasound show no change to his lungs, kidney or liver … also fabulous. There is no indication of any cancer anywhere inside his […]

Mindset

Sometimes it’s hard to get back into that old mindset … that old cancer mindset. I had two other, completely disease-free topics I was going to write about today, and then I doubled checked my calendar and was reminded that Austin has his 20-month scans tomorrow. Twenty months. Now that’s a significant chunk of time […]

Not Bad

Not bad at all. We just completed what was undoubtedly the best year of Austin’s life. The only year of his life, so far, without hospital stays (those few overnight hours in the ER in June in the ER were nothing). The only year of his life, so far, without surgery. The only year of […]

Any Time

I’ve have spent years trying my hand at elaborate birthday cakes for my children. It all started with the 3-dimensional Hummer cake for Braedan’s 4th birthday, which I have woefully few pictures of: Then there was the Dumbo cake, which required an actual trial cake a few days before: The rocketship blasting off into space […]

The Day After

People always comment on how lousy it is that Braedan’s birthday is Christmas Eve. And granted, it’s not ideal. He has a major crush of celebrations and presents all at once, with nothing to balance it out across the year. It all feels rushed and squeezed in amidst the many many other festivities. But he […]