We’re still waiting for the official results, but a few hours ago I did get this text from Austin’s oncologist: “So far, so good. I’ll call later with the final results.” So, there you have it. Now you know as much as we know. And you can feel as relieved as we feel.
In the Time-Never-Slows-Down category, Austin has an MRI of his abdomen and CT scan of his chest tomorrow to check for signs of cancer. These are his “end-of-treatment” scans which might be a serious misnomer. Or might not. We’re only officially scheduled for one more three-day round of chemo, which will bring us successfully (or […]
Austin is not in renal failure. No, that’s not some miraculous reversal of the past few days’ news; I just wanted to make sure you all understood that it hasn’t happened yet. All of this action we’re taking is designed to prolong the life of that remaining half-kidney as far into his future as possible. […]
I’m still mad. Now I’m mad at food labeling laws for not requiring measurements of potassium and phosphorous on packages. Oh, and I’m mad because the “Foods to Enjoy” sheet lists apple juice right alongside cranberry juice and yet the cran-apple I bought claims it has 15 milligrams of potassium (super) while the apple juice […]
Every time we are faced with a new obstacle, I feel overwhelmed and pissed off and sad and convinced that this one is it, this is the one that will bring us down, that will change who we are, who he is. And every time I’ve been proved wrong. Every time we’ve ended up okay. […]
All along, throughout this entire cancer journey, the function of Austin’s kidney has been a guidepost for us, a signal of which way the wind is blowing. It has given us hope, it has given us something to fight for, it has at times taken on enormous (and perhaps overblown) significance as the determining factor […]
Okay. That’s my answer. That’s the post. Okay. It’s not fantastic like it was in January. And it’s definitely not horrible like the score from last Thursday. It’s okay. And that’s good enough. I’ll give you the hard numbers, so you can make some sense of this roller coaster we’re forced to ride each day. […]
No results yet from today’s test but have a timely post to share nonetheless. Parenting is full of big moments, both good and bad. Significant decisions, momentous occasions, important milestones. But sometimes it is the little moments, those small joys of parenting, that mean the most. Snuggling in a thunderstorm, like we did last night, […]
I know that this stuff can be confusing. And of course scary. And sometimes being scary makes it more confusing or being confusing makes it more scary, so let me give you a little more information. This test, the GFR (glomerular filtration rate, words you can quickly forget) or nuclear scan, is one of the […]
After last week’s emotional high, we’ve begun that speedy descent downward. Well, no, that’s not true, we haven’t begun it yet. It’s more like we’re perched at the top of the roller coaster, having slowly crept up with the creak creak creak of the wheels and are now poised at the top, awaiting the plunge. […]