I lost my voice. Both literally and figuratively. We’ve had no phone or Internet access until today, six days into living here. And blogging from my cell phone is a drag. So, my “voice” has been temporarily silenced. Plus then, I lost my voice, probably due to sheer exhaustion. Woke up Thursday morning unable to […]
… sweet, sweet home. We were released yesterday at noon, and I’m now scrounging through boxes unable to find my toothbrush. But we are home.
We’re hanging in there, thanks to an army of friendly volunteers helping wrap, pack, carry, load, move, feed and care for. Austin is still in the hospital, but should be released tomorrow which means that, yes, thankfully, we will have our last night together here on Edgehill Road, a minor issue in the grand scheme […]
I am not pleased. Remember that we’re set to move in four days and are in the midst of packing up our entire house? And remember that little rule about going to the hospital if Austin has a fever over 100.4? Can you guess where this is going? We went to the clinic today […]
My postings will surely be sporadic this week and next as we are in the throes of packing up our house and I can barely make my way through the maze of boxes to reach the computer. We’ve only been here for eight years but, oh my god, do we have a lot of stuff! […]
Sorry to leave you all hanging on such a bad post back there. These past few days have certainly been a series of ups and downs. We are home, released first thing on Thursday morning. Austin’s spunky self has re-emerged, he’s jumping on the mini-trampoline and playing rocket blasters with his brother (with whom he […]
Long day. Ugh, another long day. Since I don’t have the energy for drama and good story-telling right now, let me cut to the chase and tell you that he has a PICC line after a serious and sustained effort at replacing the Mediport. He was in surgery for four hours, not quite the “quickie” […]
We had a day once, back during the first round of cancer, that a nurse described as The Day of a Thousand Paper Cuts. We were in the PICU following one of Austin’s surgeries and he was on temporary dialysis but the dialysis machine kept breaking and leaking water all over the floor. When a […]
Back to the hospital today, for the next round of chemo. My little guy was zipping about the halls on his tricycle all afternoon, a sight completely incongruous with his balding head and IV line. But typical Austin, nonetheless. This week includes the third of his three new drugs, one we’ve never had before that’s […]
The death of your child follows you everywhere you go, hovering in your blindspot. That’s how Lorrie Moore describes parenting a child with cancer in People Like That Are The Only People Here. In your blindspot: just out of reach, never in focus, but you know it’s there. So you move along, heading for that […]