This has been quite a few days. Depths of despair punctuated by brief moments of clarity and even hope. I’m mostly just sad. Sad for all Austin has had to endure and all he will have to endure, sad for Braedan for the very same reasons, and sad for us. More than ever in this […]
Oh, it’s never fucking enough. Somehow, every time, no matter what we do, no matter what Austin does, it is never fucking enough. We got the pathology reports yesterday and, if you were to rank the four possible outcomes from best to worst, this is the third one down. Which, you know, is sort of […]
No, this isn’t about a bad pathology report or anything. It’s actually sort of funny. (Just wanted to set your minds at ease after reading that title.) You know the whole “pee is pee and pee is good” business and all the stars that include wishes for pee and lots and lots of it? Well, […]
Things are going fairly well. As is so often the case in these situations, it’s the little things that are causing the most pain (literally). Austin was extremely irritated by the NG tube, which thankfully was removed this morning. His next complaint was his foley catheter, which caused my visiting brother pain to even think […]
OK, I ‘ve just arrived home having only slept two hours last night so this one may be a bit garbled. But, exhausted as I am, I am breathing deeply and feeling pretty good. Most important things first, Austin is out of surgery and in the PICU with his daddy and with his kidney (not […]
This one is short and sweet. Just got a text on our OR issued pager saying the area has been removed and all is going well. We should see him in an hour or two. More later but SO FAR SO GOOD!
Here we go again. Mark and Austin just left for the hospital and I will meet them this there evening (after updating, running and having dinner with at my parents’ with Braedan). I will stay the night and Mark will return bright and early tomorrow morning. This afternoon, Austin needs a “bowel prep” which is […]
My sincere apologies (partly tongue in cheek) for not requesting anyone’s help on Thursday night with the whole key debacle. It honestly didn’t even occur to me to ask someone else to do it for me but I promise you I will the next time (although we do try to learn from our mistakes and […]
If, by any chance, you’ve been waiting around for some news from today’s scans, well … imagine how we feel. But we do finally have news and it’s mostly good. Good because it hasn’t spread; there is no cancer in Austin’s lungs or liver. Mostly because the mass seems to have grown yet again (from […]
Finally, some answers to the question I’ve heard literally hundreds of times over the past few days: What can I do to help? First, the practical stuff: My friend Julie will create a plan for meal deliveries so watch for that in your inbox. These need not be big or fancy meals; just enough for […]