Like Running a Marathon
On July 31, 2007, our very first night on the pediatric oncology floor, our pediatrician came to visit with me and Mark to help prepare us for what lay ahead. He described the journey we were about to embark on as a marathon, one we had not trained for (except that we’d been training since the moment we became parents), one we didn’t sign up for, but one we had to run nonetheless.
I know a thing or two about running, having completed four full marathons and countless half marathons, including Cleveland’s half this morning. I know that no matter how well-trained you are, there is always something beyond your control, some seemingly small sore spot that can cripple your run. I know that no matter who you train with or start out with or chat with along the way, the race is yours alone and no one else can take a single step for you. I know that you have moments when you feel completely unprepared, cowed by the hill in front of you or the almost endless stretch of road still to come, when you wonder what you’ve gotten yourself into and how you’ll ever get yourself out of it. And I know you have moments when you feel strong, on a slight downhill, wind at your back, like you can fly, like you can do anything.
Without question, this cancer journey has been our marathon. There’ve been twists and turns we never anticipated, there have been steady even stretches where we get into such a groove we almost forget what we’re up against. There’ve been steep uphills where continuing seemed impossible and there’ve been bursts of speed to push us forward.
And there have been fans.
Race fans may not know their impact (and judging by today’s strangely quiet crowds, they may not know how much they’re needed). But fans are a completely necessary component of a long race. Perfect strangers calling out your name and urging you onward, giving you strength and hope and courage, make a huge difference. As do the “fans” we’ve acquired along this journey. You may at times watch silently from the sidelines but we see you there and we know that when you’re really needed, you’ll step up and cheer us on, reminding us of the strength we already have inside.
This race of ours is certainly not over. We’re due for five days of chemo starting this Thursday, pending the enormously consequential results of tomorrow’s kidney function test. And then three more rounds of chemo after that, with an estimated finish in early August. We’re more than halfway, which is a huge accomplishment, but just like in full marathons, that last half is always harder than you think.
We’re a little beat down, muscles sore and tired from overuse, chasing an ever-moving finish line. But we’ve been training for this for years now and we’ve learned an awful lot, and oh I do love to run, so we set our sights a little farther down the road and we dig a little deeper and we let the cheers of our fans lift us forward. And we know that we will finish strong.
Oh, and in case you’re wondering: 1h52m. Strong enough.
Krissy, I should know by now, after being on the sidelines for the last two and a half years, and following every word you write to be prepared. Be prepared to be amazed; to be moved; to be entertained; to feel appreciated; to laugh; and to cry! (Why don’t I automatically have a hankie handy before reading?) But it still always takes me by surprise! And it keeps us all focused on the race and the finish line…and Austin.
Just stumbled on your blog. My prayers are with you all. There are so many things as a parent that scare me to death, and obviously a child with cancer is one of them. God bless you guys.
I am a stranger, on the sidelines, rooting for Austin, for you, and your family. If only your braveness, your strength, your wisdom, your research, your love, your gracefulness could heal – your little boy would be healed a 1,000 times over. We continue to pray for Austin. You are an amazing woman!