If, by any chance, you’ve been waiting around for some news from today’s scans, well … imagine how we feel.

But we do finally have news and it’s mostly good. Good because it hasn’t spread; there is no cancer in Austin’s lungs or liver. Mostly because the mass seems to have grown yet again (from two centimeters in diameter to almost three), although it’s unclear whether the size has actually changed or whether the view on a 3-dimensional CT scan is just different enough from a 2-dimensional ultrasound that it looks bigger. Ultimately (as I have been heartily assured by our docs) this doesn’t change our approach on Monday, and in fact it lets us know (yet again) that we are doing the right thing by moving ahead with this as quickly as we are.

Here’s the interesting thing though. The cystic lesion (the very thing we were watching via ultrasound when we found the current new solid lesion) seems to have been pushed out of place by the new lesion. They look like they’ve merged into one which might be why it’s now bigger. The doctors won’t be able to tell for sure until they actually open him up and are looking at these tumors head-on but it’s possible the solid one either grew inside the fluid one and burst out of it or maybe they’ve just been smooshed together.

All of this made me very nervous when I heard it (Wait, it’s moved, why would it do such a thing? Oh no, now it’s bigger — can we  still spare the kidney? etc etc) but according to the surgeon, the plan remains. He even said that being slightly bigger is actually better because he’ll be better able to see it and manipulate it with his hands. Its increased size doesn’t necessarily mean they’ll have to remove any more of the kidney. Imagine that you made a pile of sand (the kidney tissue) and then stuck a small fist (tumor) in it, displacing the sand. If you stuck a larger fist (larger tumor) in it, and then eventually pulled it out, the sand that remained would be the same. That’s the hope with the kidney. They’ll be removing something that isn’t actually part of the kidney, hopefully leaving just as much kidney behind as they would have two weeks ago.

Anyway, I know that’s all a bunch of medical mumbo jumbo. Just know that my little man did a spectacular job in the hospital last night (without letting out even a peep when his IV was inserted) and all day today. He and Mark are still there, with hydration is set to be done by 9pm and then he’ll be home to sleep in his own bed.

Oh, but first (because the day hasn’t been long enough), I have to bundle Braedan up in his warmest pajamas and drag him out in 18-degree weather well past his bedtime on a school night to drive back down to the hospital and hand deliver Mark’s car keys, which, as we switched back and forth between each other’s cars during our multiple shifts on and off today, somehow ended up here at home while his car is there in the parking garage. Nice.

3 replies
  1. Sharon Shumaker
    Sharon Shumaker says:

    Krissy, this is Sharon, just a few doors down. Seriously!! the next time you need to get keys to anyone PLEASE call us 659-4114. we will take the keys or stay at the house with Braeden or whatever it takes. We are so close and it would not be a big deal at all.

    Reply
  2. Jodi Molner
    Jodi Molner says:

    Krissy, I was waiting to hear, and I’m glad the scan went pretty well. I missed you when I was in the hospital and visited about noon, Austin really looked great, smily and playful. My work number is 844-7865 if you need anything next week. Jodi

    Reply
  3. Barbara
    Barbara says:

    Here’s what I’m thinking, and the miracle I’m hoping for….. and hopefully the way things will go …… Austin has his surgery, and they find one of those nasty little nephrogenic rests that’s just starting to turn into a full blown Wilms’ tumor – so they take it out – spare the kidney – and that’s the LAST one of those nasty little things….. the kidney is spared – maybe he’ll need some dialysis after surgery – but then that’s it – no more nephrogenic rests, no more Wilms’ tumor, no more surgery …… that would be a Christmas miracle! I’ll be praying for you ….. Barbara

    Reply

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