What I Call Wishing

Here we go again. We’re packing our bags, bringing Austin’s comfy pillows (which are so much better than the plasticky, flat ones the hospital uses) and all his lovies, who he refers to as “my guys.” His guys include, among other assorted stuffed animals, Cookie Monster (“Cookie Mah-mer”) and Koala (“Kah-wa-wa”). This time we also have the single-cup […]

Pretty Darn Good

You know, as a person who likes words, I am a little disappointed with the word “relieved.” There is no superlative form, nothing to make simple relief that much greater. Happy can turn to ecstatic, angry to enraged, hungry to famished. But relieved just becomes very very relieved. So that’s what we are right now, good […]

Fattening Up

First things first, the chest CT came back negative, which is positive. One sigh of relief. Also, we’ve scheduled our meeting with Dr Auletta (aka Jeff) for tomorrow afternoon, after which we should have at least the beginnings of a plan in place. As for now, the boys are thoroughly enjoying themselves. Yesterday, my parents […]

Fightin’ Words

Life continues to move forward in the most normal way. Austin had a chest CT today and it was the first time in the past two years that any procedure went more quickly and easily than anticipated. We’d decided to try it without sedation since it would be so fast and he didn’t require any […]

Rising

When I looked out the window this morning and saw a fine dusting of snow covering our cars and the top of the swing set, I shook my head and started to say, “I really thought it was over,” but didn’t quite finish that statement because what do I know about over? I do know […]

A Good Year

We believed it was gone. We really really really believed it was gone. Not just that we wished it was gone or wanted it to be gone. It was gone. And now it’s back. Dr. Auletta came over yesterday afternoon — you know you’re in trouble when your oncologist makes house calls. We’d already talked […]

Déjà Vu All Over Again

Most days I’m a normal mom. I do normal mom things, think normal mom thoughts, feel normal mom feelings. I’m woken up by Mark mere minutes before he heads to work, having completed his whole morning routine with Austin at his heels, asking endless questions, knocking over his juice, begging to be held. The boys and […]

The Luckiest

                                I am the luckiest. I have a family who stands beside me, backs me up and cheers me on. I have a rock solid relationship with my rock solid husband Mark. I have friends who encircle and enrich me. I have a strong and healthy and able body, despite having had type 1 diabetes […]